Just contemplating the idea of a feeding tube can feel very scary and stressful for many parents and caregivers. With these resources, support from your healthcare team, and practice, your child’s health and nutrition can improve and you can successfully integrate tube feeding into your family meal routine.
Here are a few comments from parents about life with tube feeding:
- “Without the tube, my baby would have had to stay in hospital for a long time. It was a hard choice at first. Tube feedings seemed scary to me. But I was tired of going to the hospital. My family was suffering because I was away from home for so long. Bringing my son home now meant coming home with the tube and the responsibility was ours. But we got used to it quickly and now we wished we had considered it sooner.”
- “When they first told me that I should try putting my own tube in, I thought ‘no way!’ But then I realized that if I knew how to reinsert the tube, I could take the tube out when it was not being used.”
- “Other people may look at you when you are walking in the mall with tubes held high in the air, but you will be surprised how many other parents will stop and say that they had to do that for their children too. Forget about those who stare – sometimes a simple explanation is all that’s needed for understanding.”
Preparing, using, and cleaning ENFit tubes and syringes playlist
How to clean an ENFit feeding tube
How to give feeds with an ENFit feeding tube
Giving medications with a non ENFit syringe
How to give medication with an ENFit feeding tube
One day at a time: coping with home tube feeding
Insertion of a Mickey G-Tube
Insertion of a balloon style gastrostomy feeding tube
Insertion of an NG Tube
Kangaroo™ Connect Enteral Feeding Pump videos:
Children's Wisconsin videos | Gtube videos | Children's Wisconsin
*Note: some of our practices at AHS may differ from those shown in the videos
*Note: some of our practices at AHS may differ from those shown in the videos
*Note: some of our practices at AHS may differ from those shown in the videos
*Note: some of our practices at AHS may differ from those shown in the videos
*Note: some of our practices at AHS may differ from those shown in the videos
*Note: some of our practices at AHS may differ from those shown in the videos
*Note: some of our practices at AHS may differ from those shown in the videos
*Note: some of our practices at AHS may differ from those shown in the videos
Note: The PEAS project is working on a single set of provincial resources, however we have posted these existing materials in the meantime
PEAS Website
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PEAS Business Cards
- PEAS Website for Eating, Feeding, & Swallowing Service Sites:
- Small Brochure (5.5 x 8.5") | Brochure (8.5 x 11") | Poster (11 x 17")
- Small Brochure (5.5 x 8.5") | Brochure (8.5 x 11") | Poster (11 x 17")
- PEAS Website for Community services:
- Small Brochure (5.5 x 8.5") | Brochure (8.5 x 11") | Poster (11 x 17")
Provincial handouts
- Home Blended Food for Tube Feeding - Introduction (Is it a Good Choice for My Child?)
- Home Blended Food for Tube Feeding - Handbook
- Home Blended Food for Tube Feeding - Emergency Care Plan
- Home Blended Food for Tube Feeding - Emergency Care Plan fillable
Alberta Children's Hospital handouts
- ACH GJ and J-Tube Booklet
- ACH NG Manual
- OMNI Pump Instructions
- Kangaroo OMNI Enteral Feeding Pump Training Video
- Kangaroo OMNI Enteral Feeding Pump Troubleshooting Video:
Stollery Children's Hospital handouts
- Stollery - Tube Feeding Your Child by Gastrostomy or Jejunostomy
- Stollery - Tube Feeding Your Child by Nasogastric Tube
Additional Resources
Websites
- Feeding Matters: www.feedingmatters.org/
- Feeding Tube Awareness: www.feedingtubeawareness.org/
General Health Information
- Healthy Parents Healthy Children: https://www.healthyparentshealthychildren.ca/
- MyHealth.Alberta.ca: https://myhealth.alberta.ca/
- Raising Our Healthy Kids: http://www.raisingourhealthykids.com/
Pediatric Home Enteral Nutrition Clinics in Alberta
- Alberta Children's Hospital: Home Nutrition Support Program
- Stollery Children's Hospital: Home Nutrition Support Program